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Achieving a synergy for the disabled

By Peter Gibilisco - posted Tuesday, 19 May 2009


Thus, the Learning Partnership Project offers further empirical evidence to support the goals of that plan. It aims to provide a strong and flexible agenda for change. It reaffirms the rights of people with a disability to live and participate in the community on an equal footing with other citizens of Victoria. This project has, as its goal, the further justification of much needed flexibility and inclusiveness to which the State Disability Plan appeals.

The Learning Partnerships Project is fundamentally to explore and understand some deeper issues facing such differently and diversely gifted people. These issues are created by overloaded systems of support that is struggling to meet growing demand. Thus, the Learning Partnerships Project is synergistically implemented to improve the working relationship and lessen the demands upon the attendant carers. It is capable of highlighting and exploring the examples that have been developed for public viewing available at the following at notjustwork.info

I will now give an example from the website, which outlines some of the conquests of synergistic approach from the perspective of Debbie Mackenzie, who is a member of the Learning Partnerships Project and one of my attendant carers, who has shown me and many others her human instincts concerning one of our calculated risks:

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When I began assisting with the research Dr Gibilisco would later conduct in Hawaii early in 2008, I became aware that there were people with a general interest in the planned research. There were a variety of views. On reflection and with the wisdom of hindsight I now can see and appreciate the spectrum of opinion. Some people expressed enthusiastic support; they were excited about the project. Others, however, were more reserved. They seemed to express an undefined concern and I suspect they found it difficult to believe that such a trip could be possible. And yes, there were obstacles we had to overcome; however there was never a lack of determination to see it through.

Most people involved in the network contributed with enthusiasm, but there were others that preferred to step back in fear that it may fail. I observed people not being able to comprehend how Dr Gibilisco, a person with such a severe physical disability, could undertake the trip; unfortunately, they let his disability get in the way of appreciating his capabilities. Also, there was incomprehension about me as the support worker. How would I be able to productively assist with the requirements of personal care while also assisting Dr Gibilisco with his research work and its complex demands.

This is a brief preview of a small and worthy contribution to the website. That is capable of helping us identify, while outlining some prevailing negative forms of sympathy (not empathy) towards people with severe disabilities or different abilities. While underlying some possibilities created through synergy and hence, mutually beneficial partnerships

Therefore, this paper acknowledges the principle that creates order from disorder.

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This paper was developed from a paper that I gave at the annual Disability Professionals Victoria Conference. Many thanks to Bruce Wearne for his assistance



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About the Author

Peter Gibilisco was diagnosed with the progressive neurological condition called Friedreich's Ataxia, at age 14. The disability has made his life painful and challenging. He rocks the boat substantially in the formation of needed attributes to succeed in life. For example, he successfully completed a PhD at the University of Melbourne, this was achieved late into the disability's progression. However, he still performs research with the university, as an honorary fellow. Please read about his new book The Politics of Disability.

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